For parents like Donna Perez of Sebring, the news comes as a relief.
Perez’s 3-year-old son, Noah, suffers from intractable epilepsy and severe seizures. She spends all day by Noah’s side taking care of him, making sure he takes six medications every day.
Noah still suffers from seizures, Perez said. He can hardly smile anymore.
“Maybe he can function for a day or not have seizures for a day or not choke,” she said. “Even if it doesn’t work it would be worth a try.”
Patients — many of whom are children — have been waiting as legal challenges and the drafting of state regulations delayed the drug’s release. [Read more at the Miami Herald]