Nine-year-old Alexis Carey gets home from school and her mom Clare Carey helps her into her favorite bean bag chair. Like a lot of 9-year-olds, she loves to play with her parents’ smart phone. Alexis can’t talk, but she’s smiling as she moves pictures around the screen with her fingers. Clare says she’s usually smiling.
“She’s got a great disposition,” Clare says. “She just loves everyone. And cuddles and kisses and she’s happy. But she can’t communicate, she can’t potty train.”
Alexis has a rare form of epilepsy called Dravet Syndrome. She started having seizures when she was a couple months old.
“You have seizures that go on for over an hour and nothing stops them,” Clare says. [Read More…]